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    Last Updated: 01/09/2026

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    MediFind found 57 doctor with experience in Stiff Skin Syndrome near Ann Arbor, MI. Of these, 56 are Experienced and 1 are Distinguished.

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    57 providers found
      Distinguished in Stiff Skin Syndrome
      Distinguished in Stiff Skin Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Danish, German, Icelandic
      Accepting New Patients

      Johann Gudjonsson is a Dermatologist in Ann Arbor, Michigan. Dr. Gudjonsson is rated as a Distinguished provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Psoriasis, Darier Disease, Cutaneous Lupus Erythematosus (CLE), Benign Chronic Pemphigus, and Vitrectomy. Dr. Gudjonsson is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      Office

      1500 E Medical Center Dr Spc 5033, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Lena Napolitano is an Intensive Care Medicine provider in Ann Arbor, Michigan. Dr. Napolitano is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Acute Respiratory Distress Syndrome (ARDS), Gastrointestinal Fistula, Gastrointestinal Perforation, Appendectomy, and Gallbladder Removal.

      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John Byrn is a General Surgeon in Ann Arbor, Michigan. Dr. Byrn is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Colorectal Cancer, Rectal Prolapse, Familial Colorectal Cancer, Ileostomy, and Colostomy.

      Learn about our expert tiers
      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Gifty Kwakye is a General Surgeon in Ann Arbor, Michigan. Dr. Kwakye is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Rectal Prolapse, Colorectal Cancer, Familial Colorectal Cancer, Ileostomy, and Ureteroscopy.

      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Scott Regenbogen is a General Surgeon in Ann Arbor, Michigan. Dr. Regenbogen is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Lynch Syndrome, Ileostomy, and Hernia Surgery.

      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Samantha Hendren is a General Surgeon in Ann Arbor, Michigan. Dr. Hendren is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Anal Cancer, Ileostomy, and Colostomy.

      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Jill Cherry is an Intensive Care Medicine provider in Ann Arbor, Michigan. Dr. Cherry is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Epidural Lipomatosis, Juvenile Angiofibroma, Pilonidal Sinus Disease, Liver Embolization, and Small Bowel Resection.

      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Samir Gadepalli is an Intensive Care Medicine provider in Ann Arbor, Michigan. Dr. Gadepalli is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Omphalocele, Tracheoesophageal Fistula, Donnai-Barrow Syndrome, Appendectomy, and Ileostomy.

      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Meghan Arnold is an Intensive Care Medicine provider in Ann Arbor, Michigan. Dr. Arnold is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Gastroschisis, Donnai-Barrow Syndrome, Fryns Syndrome, Oophorectomy, and Appendectomy.

      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Ronald Hirschl is an Intensive Care Medicine provider in Ann Arbor, Michigan. Dr. Hirschl is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Hernia, Tracheoesophageal Fistula, Esophageal Atresia, Ileostomy, and Oophorectomy.

      Experienced in Stiff Skin Syndrome
      Internal Medicine
      Experienced in Stiff Skin Syndrome
      Internal Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients
      Offers Telehealth

      Nadeem Abou-Arraj is a primary care provider, practicing in Internal Medicine in Ann Arbor, Michigan. Dr. Abou-Arraj is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D). Dr. Abou-Arraj is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Internal Medicine
      Experienced in Stiff Skin Syndrome
      Internal Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barbara Soyster is a primary care provider, practicing in Internal Medicine in Ann Arbor, Michigan. Dr. Soyster is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Juvenile Primary Osteoporosis, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Soyster is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Internal Medicine
      Experienced in Stiff Skin Syndrome
      Internal Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffery Smith is a primary care provider, practicing in Internal Medicine in Ann Arbor, Michigan. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Maturity Onset Diabetes of the Young, Pulmonary Embolism, Type 2 Diabetes (T2D), Gastrostomy, and Bladder Reconstruction. Dr. Smith is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Internal Medicine
      Experienced in Stiff Skin Syndrome
      Internal Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jennifer Nastelin is a primary care provider, practicing in Internal Medicine in Ann Arbor, Michigan. Dr. Nastelin is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D). Dr. Nastelin is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Mancuso is a Dermatologist in Ann Arbor, Michigan. Dr. Mancuso is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Linear Hamartoma Syndrome. Dr. Mancuso is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Severine Cao is a Dermatologist in Ann Arbor, Michigan. Dr. Cao is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Hidradenitis Suppurativa, Melanoma, Kaposiform Hemangioendothelioma, and Fetal Cystic Hygroma. Dr. Cao is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Plastic Surgery
      Experienced in Stiff Skin Syndrome
      Plastic Surgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Noah Saad is a Plastic Surgeon in Ann Arbor, Michigan. Dr. Saad is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Breast Enlargement In Males, Stiff Skin Syndrome, Acrogeria, Gottron Type, Bazex Syndrome, and Lymphadenectomy. Dr. Saad is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Orringer is a Dermatologist in Ann Arbor, Michigan. Dr. Orringer is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Hirsutism in Women, and Linear Hamartoma Syndrome. Dr. Orringer is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Michael Englesbe is a General Surgeon in Ann Arbor, Michigan. Dr. Englesbe is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Hernia, Liver Failure, End-Stage Renal Disease (ESRD), Liver Transplant, and Kidney Transplant.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Hindi, Kannada, Tamil, Telugu
      Accepting New Patients

      Trilokraj Tejasvi is a Dermatologist in Ann Arbor, Michigan. Dr. Tejasvi is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis. Dr. Tejasvi is currently accepting new patients.

      Showing 1-20 of 57

      Last Updated: 01/09/2026

      What is the definition of Stiff Skin Syndrome?

      Stiff skin syndrome (SSS) is a rare syndrome characterized by hard, thick skin, usually on the entire body. The thickening of the skin can limit joint mobility and causes joints to be stuck in a bent position (flexion contractures). Other signs and symptoms may include excessive hair growth (hypertrichosis), loss of body fat (lipodystrophy), scoliosis, muscle weakness, slow growth, and short stature. Weakness or paralysis of the eye muscles have also been reported. Stiff skin syndrome is caused by genetic changes (changes) in the FBN1 gene and is inherited in an autosomal dominant manner. Diagnosis is based on a clinical evaluation that is consistent with Stiff skin syndrome, and the diagnosis can be confirmed with genetic testing.

      When should I see a Stiff Skin Syndrome doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Stiff Skin Syndrome doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Stiff Skin Syndrome doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Stiff Skin Syndrome doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Stiff Skin Syndrome doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Stiff Skin Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Stiff Skin Syndrome doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Stiff Skin Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Stiff Skin Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Stiff Skin Syndrome doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Stiff Skin Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Stiff Skin Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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